Specialists convene to diagnose and treat patients with this inherited disorder
MAYWOOD, Ill. â Marfan syndrome is a potentially deadly genetic illness that afflicts hundreds of Chicago area residents, many of whom are unaware that they are affected.
If you are diagnosed with Marfan syndrome or you have symptoms or features that suggest you might be affected, you can improve your prognosis and lengthen your lifespan by getting treatment as soon as possible. The âclassicâ signs of Marfan syndrome include heart murmur, tall lanky body type, protruding or caved in breastbone, high roof of mouth, curvature of the spine and âloose joints.â
Loyola University Health Systemâs new multidisciplinary Marfan syndrome clinic trims the time patients have to wait for treatment after being diagnosed with the inherited disorder, which affects the connective tissues of the body.
âPatients will find that all aspects of their care and treatment will be coordinated and completed within the clinic, which saves them time and worry,â said Dr. Peter Varga, director, division of pediatric cardiology, Loyola University Chicago Stritch School of Medicine.
The new clinic features a full range of outpatient services provided by physicians and other health-care professionals at a single location, Loyola Oakbrook Terrace Medical Center, 1S260 Summit Ave., Oakbrook Terrace. The team of Loyola specialists dedicated to the Marfan syndrome clinic includes adult and pediatric cardiologists, cardiovascular surgeons, ophthalmologists, orthopaedic surgeons and geneticists. These specialists have expertise in managing patients with Marfan syndrome, who may have health problems such as enlargement of the arteries, mitral valve prolapse, curvature of the spine, nearsightedness or skeletal problems.
A nurse coordinates outpatient and inpatient care with the appropriate physicians. Services available for adults and children at the Oakbrook Terrace Medical Center include:
â¢ Genetic analysis to make a diagnosis. â¢ Cardiology to detect and monitor tearing or weakening of the aorta and problems with heart valves. â¢ Cardiovascular surgery to correct problems with the aorta and heart valves. â¢ Ophthalmology to detect, monitor and correct vision problems related to Marfan. â¢ Orthopaedics to monitor changes in the spine, chest and skeletal system that could affect the development of the heart, lungs and other internal organs. â¢ Otolaryngology to detect, monitor and treat Marfan-related disorders of the ear, nose, throat and the head and neck.
The clinic provides evaluation and care monthly. Clinic hours will be expanded over time to accommodate patient demand. If you would like to make an appointment or need assistance to find an appropriate physician, please call (888) LUHS-888.