Monday, August 1, 2011

How a Loyola Patient with a Double-Lung Transplant is Beating the Odds

MAYWOOD, Ill. -- Fewer than half of lung transplant patients survive for five years. But nearly 14 years after receiving a double-lung transplant at Loyola University Medical Center, Damian Neuberger's lungs continue to function normally. He breathes easily while walking 4 or 5 miles a day. Neuberger, 68, of Glenview, has become a role model for the patients he meets in Loyola's lung transplant support group. His advice:

"You have to be incredibly compliant with your treatment plan. Take your pills on time, every time. Any time you start to get sick, call your center immediately. And enjoy life."

Lung transplant patients need to take as many as 20 or 30 medications. They also have to regularly monitor their lung function, blood sugar and blood pressure. Neuberger's physician, Dr. Charles Alex, said Neuberger is very detail-oriented, "and this is the type of patient who tends to do well. He takes very good care of himself." Neuberger also credits his physicians, nurses and technicians at Loyola. Karen Pelletiere, RN, his primary nurse coordinator, plays the key role in his day-to-day care.

"It's not enough to say they're outstanding," he said. "It goes beyond that."

In 1983, Neuberger was diagnosed with idiopathic pulmonary fibrosis -- a scarring or thickening of the lungs, with no known cause. Over time, it became increasingly difficult to breathe. Eventually, he was tethered to a 10-pound oxygen tank 24 hours a day. He couldn't even talk without getting winded. On Nov. 14, 1996 -- his 54th birthday -- Neuberger was put on the transplant waiting list.

"I remember seeing the bare trees and wondering whether it would be my last winter," he said. While on the waiting list, Neuberger met a patient who was more than seven years post-transplant.

"It gave me hope that this was going to work," he said. A pair of lungs became available in October 1997. Neuberger went home after 10 days in the hospital. Six weeks later, he returned to work as a senior research scientist at Baxter Healthcare. (He is a Ph.D. microscopist, a specialist in all types of microscopes used as problem-solving tools.)

The following spring, Neuberger bought a bike and took a 19-mile ride.

"It was glorious, being able to breathe and not gasping for breath," he said.

Lung transplant patients generally do not survive as long as most other organ transplant patients because transplanted lungs are more prone to chronic rejection. The five-year survival rate of lung-transplant patients is 47.3 percent, according to the Organ Procurement and Transplantation Network.

Fortunately, Neuberger has not experienced chronic rejection. But the immune-suppressing drugs he diligently takes to prevent rejection are causing kidney failure, and he likely now needs a kidney transplant. He also has diabetes, another side effect of the medications.

But Neuberger is otherwise in good health, and he has stayed busy since he retired in 2004. His activities include:

  • Spending time with his wife, Judy, their two children and three grandchildren
  • Consulting work
  • Care-giving ministry at his church
  • Volunteering with three groups at the Chicago Botanic Garden
  • Serving as a board member and newsletter editor of Second Wind Lung Transplant Association
  • Member of the Thoracic Transplantation Committee and the Lung Subcommittee of the United Network for Organ Sharing/Organ Procurement and Transplantation Network.

"He is selflessly giving back to the community," Dr. Alex said.

About Loyola University Health System

Loyola University Health System (LUHS) is part of Trinity Health. Based in the western suburbs of Chicago, LUHS is a quaternary care system with a 61-acre main medical center campus, the 36-acre Gottlieb Memorial Hospital campus and more than 30 primary and specialty care facilities in Cook, Will and DuPage counties. Loyola University Medical Center’s campus is conveniently located in Maywood, 13 miles west of Chicago’s Loop and 8 miles east of Oak Brook, Ill. At the heart of the medical center campus is a 559-licensed-bed hospital that houses a Level 1 Trauma Center, a Burn Center and the Ronald McDonald® Children's Hospital of Loyola University Medical Center. Also on campus are the Cardinal Bernardin Cancer Center, Loyola Outpatient Center, Center for Heart & Vascular Medicine and Loyola Oral Health Center as well as Loyola University Chicago Stritch School of Medicine, Loyola University Chicago Marcella Niehoff School of Nursing and the Loyola Center for Fitness. Loyola's Gottlieb campus in Melrose Park includes the 255-licensed-bed community hospital, the Professional Office Building housing 150 private practice clinics, the Adult Day Care, the Gottlieb Center for Fitness, Loyola Center for Metabolic Surgery and Bariatric Care and the Loyola Cancer Care & Research at the Marjorie G. Weinberg Cancer Center at Melrose Park.

Trinity Health is a national Catholic health system with an enduring legacy and a steadfast mission to be a transforming and healing presence within the communities we serve. Trinity is committed to being a people-centered health care system that enables better health, better care and lower costs. Trinity Health has 88 hospitals and hundreds of continuing care facilities, home care agencies and outpatient centers in 21 states and 119,000 employees.